Our Hearts, Swollen With Stories

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13730792_1192016280829225_8078964380935203368_oRyan Prior, founder of the Blue Ribbon Foundation and co-director of Forgotten Plague, writes for Wish Dish’s #Halfthestory on his most harrowing experience filming the documentary.

 

“I’ve been invited to speak coast-to-coast from the National Press Club to Stanford Medical School. My film, Forgotten Plague, which tells the story of a disease called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has been hailed a “Must-See Documentary” by The Huffington Post. Each week I might be meeting a U.S. Senator, talking to world-renowned scientists, meeting with CDC officials, or speaking on the radio. But most of what I’m sharing on social media only represents half the story.

Beneath that thin façade of success, there is a much more sinister and grim reality that my team and I live with every day, plagued by the universal notion that there is no magical formula for success other than hustle, 12-14-hour days, and knowing the greatest success in any early business is to fight hard enough so that the organization survives at all. The bad days, of which there are many, are best left forgotten, and the failures are never Instagrammed.

This isn’t out of vanity, but rather a survival instinct.”

Read the rest of Ryan’s story at Wish Dish.

 

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