Share your Story: Barbara Tuber-Sooy

Name: Barbara Tuber-Sooy Missing Since: 1980 Name: Matthew Tuber-Sooy Missing Since: 1992   “I first became sick in May 1980. After 8 years I was diagnosed with what was then called fibrositis. In October 1992 my precious 12 year old son, Matthew, got what we thought was the flu. After 5 months and 15 doctors he […]

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Share your Story: Annika Carlson

Name: Annika Carlson Missing Since: 2016 Location: Dallas, Texas   “21 years old. The age of fun and freedom as an adult right? Not if you have ME. Wake up. 10 hours of sleep. Not rested. Breakfast in bed. Every meal in bed actually. Maybe shower if I have the energy. Tired from shower. Back to bed. […]

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Share your Story: Anil van der Zee

Name: Anil van der Zee Missing Since: 2007 Location: Amsterdam   “Praised from the dark. Being alone on stage, you really don’t see audience. The first 2 rows might be visible, however the rest is as obscured as the dark night. Possibly their cries and sounds reach your ears on stage, but for sure, they are felt. Their presence […]

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Share your Story: Sally Richardson

Name: Sally Richardson Missing Since: January, 2014. Location: Birmingham, United Kingdom   “My husband had a serious stroke in 2014 and I ended up looking after him and having to return to work full-time to make mortgage payments. A year later, my pet rabbit and best friend died suddenly in the same week, followed by the death […]

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Share your Story: Fiona M

Name: Fiona M Missing Since: 2010 Location: Australia     “The signs were there, long ago. In my last year at university, I developed stubborn bouts of tonsillitis. Later that year, I got a fever, was sick for 10 days, and lost a lot of weight. A doctor said, “It’s like the flu, but it’s not the flu.” […]

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Share your Story: Jamison Hill

Name: Jamison Hill Location: California “The room is completely dark, even after I take off the washcloth and tanning goggles shielding my eyes from encroaching light. When Ryan and Nicole interviewed me for Forgotten Plague the body I worked so hard to obtain was wasting away, but little did I know how bad it would get. Gone […]

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Share your Story: Janet Dafoe (Whitney Dafoe)

Name: Whitney Dafoe Missing Since: 2006 Location: Palo Alto, CA Written by: Janet Dafoe, Whitney’s Mother   “I have a beautiful son. At about age 21 he started getting sick, and gradually faded from us. Whitney’s been lying in bed for 3 years, unable to speak with me. Now, even his memories fade from him. We had such a […]

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Share your Story: Lisa Valerio

Name: Lisa Valerio Missing Since: January 14, 2002 Onset Age: 31 Current Age: 45 Location: Deltona, Florida   “My name is Lisa. I woke up January 14, 2002 and felt like a truck had rolled over me during the night. I was 31. I tried to get dressed for work, but it was impossible. The pain was intense and I […]

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Share your Story: Ashley Davis (Whitney Dafoe)

Name: Whitney Dafoe Missing Since: 2006 Location: Palo Alto, CA Written by: Ashley Davis, Whitney’s Sister   “As a girl growing up, dreaming of your perfect wedding with your friends, you think flowers, and tulle, and candlelight. As an adult all you try to do when planning that wedding is try to get it as close to […]

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Share your Story: Stephanie Land (Whitney Dafoe)

Name: Whitney Dafoe Missing Since: 2006 Location: Palo Alto, California Written by: Stephanie Land, Friend **This originally appeared on Stephanie’s Website** In Going to Visit a Friend Who’s Sick “I told someone about the time Whitney and I had together recently, and said it was the perfect summer romance. “We had a month. Exactly a month. And he was […]

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