Amsterdam Girls Raise Funds for Blue Ribbon Foundation

(Left to Right) Merel – 13, Stephanie – 12, Havana (holding the sign) – 12, Sophie- 13. By: Anil Van der Zee One of my good friends’ daughter Havana (12) surprised me with a very beautiful video message. She did something really incredible. I was so moved by it I felt it needed to be made […]


Join the ePatient Revolution

 We need more and more ME/CFS patients to integrate into the ePatient (“engaged/empowered patient”) Revolution. Get informed, tell your story, unite with other patients online, and change healthcare for the better. Three weeks ago, I attended the Stanford Medicine X Conference, an annual forum that celebrates “emerging technologies in medicine.” The conference, similar to what […]


Washington Press Event Breaks Ground

Dr. Andreas Kogelnik and Ryan Prior, who suffers from Myalgic Encephalomyelitis (ME), headlined a press briefing in Washington, D.C., on Jan. 24. The event took place at the venerable National Press Club and was attended by a mixture of reporters and ME patients. Notably present were reporters from The Washington Post and The Christian Science Monitor. The event […]

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