• Advocating for ME/CFS
    Advocating for ME/CFS
    The Blue Ribbon Foundation's mission is to foster an international dialogue toward finding the cause, cure, and prevention of neuro-immune diseases. We seek a world in which all medical students are educated about ME/CFS.
  • Advocating for ME/CFS

Share your Story: Lisa Valerio

Name: Lisa Valerio Missing Since: January 14, 2002 Onset Age: 31 Current Age: 45 Location: Deltona, Florida   “My name is Lisa. I woke up January 14, 2002 and felt like a truck had rolled over me during the night. I was 31. I tried to get dressed for work, but it was impossible. The pain was intense and I […]

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Share your Story: Ashley Davis (Whitney Dafoe)

Name: Whitney Dafoe Missing Since: 2006 Location: Palo Alto, CA Written by: Ashley Davis, Whitney’s Sister   “As a girl growing up, dreaming of your perfect wedding with your friends, you think flowers, and tulle, and candlelight. As an adult all you try to do when planning that wedding is try to get it as close to […]

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Share your Story: Stephanie Land (Whitney Dafoe)

Name: Whitney Dafoe Missing Since: 2006 Location: Palo Alto, California Written by: Stephanie Land, Friend **This originally appeared on Stephanie’s Website** In Going to Visit a Friend Who’s Sick “I told someone about the time Whitney and I had together recently, and said it was the perfect summer romance. “We had a month. Exactly a month. And he was […]

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Our Hearts, Swollen With Stories

Ryan Prior, founder of the Blue Ribbon Foundation and co-director of Forgotten Plague, writes for Wish Dish’s #Halfthestory on his most harrowing experience filming the documentary.   “I’ve been invited to speak coast-to-coast from the National Press Club to Stanford Medical School. My film, Forgotten Plague, which tells the story of a disease called myalgic encephalomyelitis/chronic fatigue […]

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How did I get here? Jumping feet-first into the ME/CFS community.

Written by Stephanie Land Janet Dafoe and I watched our footing, making our way down to the beach. “I have a rule,” she said, pausing to take off her sandals. “You have to be barefoot at the beach.” I’d convinced her to come out there with me that afternoon. We’d just met in person for […]

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Join the ePatient Revolution

 We need more and more ME/CFS patients to integrate into the ePatient (“engaged/empowered patient”) Revolution. Get informed, tell your story, unite with other patients online, and change healthcare for the better. Three weeks ago, I attended the Stanford Medicine X Conference, an annual forum that celebrates “emerging technologies in medicine.” The conference, similar to what […]

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Register now for the Step Up for ME 5K!

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Designing Your 30-Day Campaign

#stepupforME #me #mecfs Telling Your Unique Story in 30 Days Less than 5 minutes average per day using Facebook, Twitter, LinkedIn and other social networks. With each post, make sure you provide a link to your CauseVox campaign with a clear call to action to donate. Day 1: Create Your Page and Share with your […]

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Washington Press Event Breaks Ground

Dr. Andreas Kogelnik and Ryan Prior, who suffers from Myalgic Encephalomyelitis (ME), headlined a press briefing in Washington, D.C., on Jan. 24. The event took place at the venerable National Press Club and was attended by a mixture of reporters and ME patients. Notably present were reporters from The Washington Post and The Christian Science Monitor. The event […]

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Patient’s Plan to Educate Doctors on Chronic Fatigue Syndrome

MEDIA ALERT Patient’s Plan to Educate Doctors on Chronic Fatigue Syndrome A young man is taking on the medical establishment with a plan to educate medical students about the devastating disease Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis, that is little, or not understood at all, by most doctors. Ryan Prior, 24, has Chronic […]

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